Banca de DEFESA: KARLA MÔNICA DANTAS COUTINHO

Uma banca de DEFESA de DOUTORADO foi cadastrada pelo programa.
STUDENT : KARLA MÔNICA DANTAS COUTINHO
DATE: 05/12/2024
TIME: 14:00
LOCAL: REMOTA - HTTPS://MEET.GOOGLE.COM/MED-QIMM-APP
TITLE:

EDUCOMMUNICATION IN LEARNING ABOUT FOOD AND NUTRITION IN AMYOTROPHIC LATERAL SCLEROSIS

KEY WORDS:

Amyotrophic Lateral Sclerosis; nutrition; education; communication; Online Learning

PAGES: 104
BIG AREA: Ciências da Saúde
AREA: Nutrição
SUMMARY:

Amyotrophic Lateral Sclerosis (ALS) is a rare neuromuscular disease characterized by degeneration of motor neurons. With a multifactorial etiology, ALS begins focally, involving upper or lower limbs, bulbar, or respiratory regions. Malnutrition reduces the quality of life and survival of affected patients. Currently, there is no curative therapy for ALS patients. Family members, caregivers, and health professionals need specific training or knowledge to perform their role with ALS patients. Therefore, health education is essential for health promotion, providing support, and knowledge for these patients' prevention, care, and self-care. The general objective of this thesis was to develop an education and nutrition path in ALS. For this purpose, five products were developed: 1) A scoping review protocol (article 1); 2) A scoping review (article 2); 3) Educational path on food and nutrition in ALS offered in the Virtual Learning Environment of the Unified Health System (AVASUS); 4) A Data Report (article 3). Furthermore, an article related to the applied educational intervention is still under construction. Each product was developed according to the required methodological specificity. The scoping review protocol (article 1) was registered on the Home OSF platform and entitled “Educommunication in nutrition and neurodegenerative diseases: a scoping review protocol”, being developed according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA ScR). The scoping review (article 2) also followed PRISMA ScR and used the following databases and virtual libraries: PubMed/MEDLINE, Excerpta Medica Database (Embase), Scopus, Web of Science, SciELO, and Google Scholar. Of a total of 189 records identified, 3 were included. Continuing, the educational path on food and nutrition in ALS consisted of 04 self-instructional courses in the format of Massive Open Online Courses (MOOCS), on “food and nutrition in ALS”, “dietary modifications in ALS”, “tube feeding in ALS” and “specific nutritional guidelines in ALS”. The Data Report (article 3) was prepared to demographically characterize the group of course participants and evaluate the educational path on food and nutrition in ALS. Article 4 was prepared to evaluate the effectiveness of the educational intervention proposed for health professionals, caregivers, and patients with ALS who completed the educational path on food and nutrition in ALS. The study was longitudinal with a quantitative approach. During the research period from June/2021 to May/2024, 14,263 course participants and 20,719 registrations were recorded in the five regions of Brazil. Among the participants, 182 signed the informed consent form and agreed to participate in the study. Of these, 142 (78%) completed at least one course and participated in the educational intervention. There was an improvement in the knowledge acquired by the participants after completing the educational courses, through the analysis of the percentage of assertiveness in the pre-test and post-test evaluation of the participants. Given the products developed, the protocol demonstrated the importance of adequate planning for the elaboration of the scoping review, identifying and mapping studies that use educommunication strategies in nutrition related to neurodegenerative diseases. In the studies selected for the scoping review, the main strategies of food and nutritional educommunication applied to caregivers and patients with neurodegenerative diseases were identified and mapped. The facilitating aspects and barriers in the development and implementation of the proposed educommunication actions were also detected. With the planning and development of the educational path on food and nutrition in ALS, it was possible to train and update the knowledge of health professionals, caregivers, and patients, enabling autonomy in the construction of knowledge. Based on this, the Data Report article was developed, which presents a descriptive study about the data that make up the educational path on food and nutrition in ALS. In a general perspective, considering the self-instructional model of continuing education in health, mediated by technology, it was observed that the educational path effectively promoted the improvement of knowledge about food and nutrition in ALS among health professionals, caregivers, and patients

COMMITTEE MEMBERS:
Externa ao Programa - 2179208 - ANA RAQUEL RODRIGUES LINDQUIST - nullExterno ao Programa - 1319361 - JUCIANO DE SOUSA LACERDA - nullPresidente - 277398 - KENIO COSTA DE LIMA
Externa à Instituição - LORENNA MARQUES DE MELO SANTIAGO - ISD
Externo à Instituição - RICARDO BURG CECCIM - UFRGS