Nuances of care: Perceptions of caregivers of students with disabilities
Caregivers. Disabled people. Health. Education
This research aims to understand the perceptions about the health-disease and care processes of people caring for students with disabilities at the Federal Institute of Education, Science and Technology of Rio Grande do Norte (IFRN). Therefore, questionnaires were applied to the coordinators of the Support Center for People with Special Educational Needs (NAPNE) in order to carry out a survey of the services provided, as well as the number of students with disabilities assisted in the entire State of Rio Grande do Norte in the IFRN through these Nuclei. In addition, we carried out a documentary analysis of the registration forms of students with disabilities at the IFRN, to select the people who take care of the students, at the IFRN in Currais Novos-RN. We also carried out semi-structured interviews with the selected people, using thematic analysis to capture the data. We adopted the theoretical-methodological perspective of Alfred Schutz's phenomenology, in order to understand from our interlocutors how they propose to describe their experiences in the act of caring for themselves and the other, how they represent and conceive of their health process -disease and care. From the analysis of the narratives, four analytical categories emerged: 1) The barriers of care; 2) Perception of caregivers about their care process; 2) Solitude in caring for the other and, 4) Caring in times of pandemic at COVID-19. By main results, we are faced with the need to bring educational institutions closer to the families of students with disabilities, which would primarily benefit the students themselves, impacting practices for a concrete social inclusion; in addition to the need to build spaces for listening and speaking by caregivers in the most varied social environments in order to take care of the caregivers. We emphasize for results that the role of care is still socially assigned to women; that the experiences of care addressed in the interviews were marked by social barriers for people with disabilities and; that, for the most part, caregivers experienced overload arising from care. We consider that the role of the caregiver is fundamental for the process of health, education and inclusion of people with disabilities, but it is necessary to discuss the economics of care for women-mothers of people with disabilities. This is because, thinking about the care of people with disabilities involves building an intersectoral support network, taking into account the care of caregivers as subjects of rights.