Construction and validation of a line of care for comprehensive
health care for people with hematologic malignancies.
Descriptors: Hematologic Neoplasms; Comprehensive Health Care; Validation Study;
Nursing Methodology Research.
Guidelines for healthcare among individuals with neoplasms are pivotal hematological
resources, serving as significant assets for improving assistance. These guidelines
establish secure care pathways, ensuring prompt access to health services and the
seamless continuation and resolution of health provision for users. These care pathways
must be systematically developed, encompassing all essential services across the three
levels of complexity. This is crucial as programmatic flows don't always align with
patients' paths, often subjecting them to arduous, fruitless, and costly journeys through
different health services. Hence, the research inquiry emerges: what constitutes the
necessary content and programmatic flow to construct comprehensive care pathways for
individuals with hematologic malignancies? Consequently, the study's primary goal is to
develop these comprehensive care pathways. The study employs a methodological
approach with a mixed methodology, anchored in Pasquali's psychometrics (2010),
structured in three phases: theoretical, analytical, and empirical. For the procedural
aspects, literature searches were conducted through a Scoping Review, focusing on
scientific evidence pertaining to contexts and healthcare for patients with hematological
neoplasms. This review yielded a final sample of 17 studies. A focal group session was
convened, comprising healthcare professionals engaged in neoplasms hematology care
at different healthcare levels. The session included participation from six nurses and a
doctor working across various municipalities in Brazil's Northeast region, facilitated
remotely via Google Meet. The research protocol underwent ethical scrutiny by the
Research Ethics Committee of the Federal University of Rio Grande do Norte, securing
approval under CAAE: 67213623.0.0000. 5537.Health professionals highlighted access
challenges faced by patients with hematologic malignancies, particularly concerning
specialized health services, socioeconomic factors, and the qualifications of healthcare
professionals. They underscored the greatest challenge: accessing treatment, influenced
by social and economic factors, limited ongoing health education (especially in Primary
Health Care), and timely access to specialized assistance. The empirical procedures,
encompassing the evaluation of booklet content and flowchart, will follow Pasquali's
model and the Suitability Assessment of Materials. Additionally, content and
appearance validation will occur via the Delphi technique, engaging judges/experts in
the research domain. These experts will be selected through Fehring's (1994) criteria,
utilizing the Lattes Platform. Lastly, analytical procedures will involve iterative Delphi
applications, continuing until an 80% consensus is reached among judges.