Development of an application for managing the self-care of patients with Amyotrophic Lateral Sclerosis
Self Care; Amyotrophic Lateral Sclerosis; Health-Disease Process; Educational Technology; Nursing.
Introduction: Amyotrophic Lateral Sclerosis (ALS) is a neurodegenerative disease that mainly affects the human motor system. The patient affected by this disorder gradually loses the ability to perform routine tasks, such as talking, eating or walking. It is believed that in chronic conditions, self-care can improve the quality of life of active patients involved in managing their conditions. From this perspective, technologies can work as a means of promoting this self-care and nursing professionals can act in its management, as they are able to clarify doubts and transmit information, qualifying the patient and their family. Objective: The aim was to develop an application for self-care management of patients with Amyotrophic Lateral Sclerosis. Methods: This is a methodological study of a quali-quanti approach to be carried out through User Centered Design (UCD). This strategy aims at the participation and collaboration of users in the development of applications, promoting the creation of useful products that meet the requirements and characteristics of users and are easy to handle, comprising four stages: analysis, design, construction and evaluation. Results: In the first stage, a Scoping Review was carried out with the aim of mapping the self-care strategies of people with Amyotrophic Lateral Sclerosis; in the second stage, there were investigations and discussions about the interactivity solutions for the user and the application; in the third stage, the application was built. The last stage was not performed during this study. The application was built in partnership with the Laboratory of Technological Innovation in Health at the Onofre Lopes University Hospital (LAIS/HUOL) of the Federal University of Rio Grande do Norte (UFRN). Conclusion: Self-care performed through technologies, such as an application, can be a powerful tool in promoting the quality of life of patients with Amyotrophic Lateral Sclerosis, as well as in self-care for other chronic diseases.