Banca de DEFESA: ANA MICHELE DE FARIAS CABRAL
Uma banca de DEFESA de DOUTORADO foi cadastrada pelo programa.DISCENTE : ANA MICHELE DE FARIAS CABRAL
DATA : 22/12/2016
HORA: 09:00
LOCAL: Departamento de Enfermagem da UFRN
TÍTULO:
Self-Esteem and Life Quality Assessment on Children who were Separated by Leprosy in the Estate of Rio Grande do Norte
PALAVRAS-CHAVES:
Leprosy; separated children: Nursery; Quality of Life; Self-Esteem and Stigma.
PÁGINAS: 192
GRANDE ÁREA: Ciências da Saúde
ÁREA: Enfermagem
RESUMO:
Leprosy is presented as one of the oldest diseases in human history with an important meaning to people’s life and community. For centuries it has been considered as an infectious and crippling disease, and it was deeply marked by stigma, prejudice and social exclusion, defined by rejection behavior of sick people and their relatives.
In the past, a mandatory isolation of lepers generated serious social and psychological problems, culminating in their total or partial removal of their core of the family. These same children were deprived from family environment, and were taken from their families in a very ruthless way, and most of time were confined and raised in foster care/orphanages.
The research aim is to evaluate the self-esteem and the quality of life of the children who were separated by Leprosy in the Estate of Rio Grande do Norte. Integrating a social-demographic variable, gender, age, family situation, occupation, education, religion, housing, income and number of children.
It draws a descriptive study, with a quantitative approach on processing and analysis. The data was gathered from 60 subjects, picked up from the MORHAN Potiguar Register (Reintegration Movement of the people who were affected by Leprosy). Amongst the research tools used, there were a social-demographic survey, Rosenberg self-esteem scale and Tool SF-36.
The following inclusion criterion were applied: people older than 18 years, living in the RN and children separated of parents infected with Leprosy and registered in the MORHAN Potiguar. The research project was approved under the number 1.047.792 and CAEE nb. 42951715.6.0000.5537 of the Research and Ethics Committee of UFRN, respecting all the requirements stated by the said Organization and by Resolution 466/12 from the National Health Committee.
All the resulting data was tabulated in a program to be statistically analyzed. It was also taken into consideration the analysis of the inner conscience scale through Croanbach coefficient.
Results are organized in two manuscripts: 1) Stigma and Self-Esteem: concept analysis in study about Leprosy; 2) Life quality of Children separated by Leprosy in Rio Grande do Norte. The first article goal was to analyze the conceptual relation of stigma and self-esteem of people in studies about Leprosy published by Nursery papers.
There was a selection of 142 articles cataloged by the BDENF, of which 14 were related to “Leprosy” and “Stigma” and dated from 1994 to 2014. The analysis of the concepts of stigma and self-esteem allowed to observe that these concepts are interrelated and presented a punitive nature, which is still represented today, being also a disease perceived as demeaning, with a weakness or disadvantageous point of view.
The research concept analysis was based on Walker and Avant proposal, following the 8 steps considered as essential to the analysis.
The second article analyzed the quality of life of children separated by Leprosy in the estate of Rio Grande do Norte, and that were confronted to lack of Family, emotional and social support among others. It was noted a light predominance of female gender (51,67%) compared to male gender (48,33%).
Average age was 45 years old (25,42%), followed by subjects between 46 and 60 years old (37,29%) and subjects above 60 years old (37,29%). Concerning school degree, elementary school formed the majority (60%), followed by middle school (31,67%) and college (8,33%). The majority of subjects were married (51,66%), followed by single subjects (26,67%), divorced (16,67%) and widows (5%). Moreover, 40,35% had a monthly minimum wage, 49,12% had 1 to 3 minimum wages and 10,53% had more than 3 minimum wages by month. Finally, 86,67% were living in their own houses.
When the children were drift apart from their families and started to live in foster care, they experienced a very traumatic situation, which deeply impacted their lives, suffering important lost and having to undergo difficult life arrangements.
Opposing to these results, life development increased with age and affected positively their mental health in a way that the higher their vitality was, the better their mental health became. The studied subjects presented a low social-economic rate and acceptable standards of quality of life. All of this was evaluated highlighting their social fields, mental health and functional capacity.
However, there was some adversarial statistic association between the fields evaluated. Explained by the concept of resilience applied to different human life phases.
Due to the fact hat the interviewed source formed a movement where people had the same interests, it generated empathy and may have positively interfered in the results. A bias in the selection may have taken place affecting some aspects of welfare specifically. Which could prevent a generalization of the results.
Moreover, an emphasis on the difficulty of understanding the Instrument SF-36 may be considered as part of the study despite of all endeavors taken during the process of gathering information even that this method is the most used in the filed. External relevance is limited by the lack of different sources.
MEMBROS DA BANCA:
Presidente - 338218 - CLELIA ALBINO SIMPSON
Interno - 396864 - FRANCISCO ARNOLDO NUNES DE MIRANDA
Externo ao Programa - 1529290 - PAULA FERNANDA BRANDAO BATISTA DOS SANTOS
Externo à Instituição - FELISMINA ROSA PARREIRA MENDES - UE
Externo à Instituição - FERNANDO DE SOUZA SILVA - UES - RN