Development and Validation of an Educational Technology for Promoting Health Care in People with Cystic Fibrosis
Cystic Fibrosis; Health Education; Educational Technology.
Cystic Fibrosis is an autosomal recessive, chronic and progressive genetic disease with a multisystemic nature, particularly affecting the lungs, digestive system and other organs. This study aimed to develop and validate an educational technology in the form of a booklet on Cystic Fibrosis to guide health professionals, family members and patients on promoting health care for people with the disease. The research was conducted at the Onofre Lopes University Hospital, linked to the Federal University of Rio Grande do Norte (UFRN) and managed by the Brazilian Hospital Services Company (EBSERH). The booklet on Cystic Fibrosis was developed on the free online platform canvas.com. The educational material was created to facilitate understanding of the disease, covering everything from basic concepts to practical strategies for management and care, in a clear and accessible manner. Nine experts evaluated the booklet using an instrument for validating educational content in health, analyzing three aspects: objectives, structure and relevance. The results indicated mostly positive opinions. Regarding the objectives, the participants assessed that the material covered the proposed theme, was appropriate for the teaching-learning process and was able to clarify doubts about the subject. Furthermore, the material was considered capable of providing reflection and encouraging behavior change. Regarding the structure and presentation, the language was considered appropriate for the target audience and appropriate for the educational material. The information was assessed as correct, objective, enlightening and necessary, with a logical organization of ideas. The text size, in general, was considered adequate. In terms of relevance, the educational material was recognized for stimulating learning, contributing to knowledge in the area and arousing interest in the topic. In the appearance validation, the illustrations were widely praised for being appropriate, clear and facilitating the understanding of the content. The figures were assessed as well arranged, harmonious with the text and enlightening, helping to present the topic in a logical manner. In the short term, it is expected that the educational material will be disseminated and applied in training and consultations, promoting greater understanding of Cystic Fibrosis and adherence to treatment by patients and family members. In the medium term, it is expected that educational practices in health institutions will be strengthened, professionals will be better trained, and educational and pharmaceutical protocols will be created to optimize the management of Cystic Fibrosis. In the long term, the material may serve as a reference for the development of other educational technologies on chronic diseases, contributing to the consolidation of a culture of health education and rational use of medicines. This work reaffirms the importance of health education and integrated pharmaceutical practice as pillars for the care of patients with Cystic Fibrosis, contributing to the strengthening of the health system and promoting social and scientific transformation.