ANATOMY OF PAIN: THE QUEST FOR THE RECOGNITION OF FIBROMYALGIA AS A DISABILITY
Fibromyalgia; Recognition; Disability; Ethnography; Embodiment.
This anthropological investigation analyzes the social, political, and legal processes involved in the recognition of fibromyalgia as a disability in Brazil. The study examines how social actors, political institutions, and legal texts understand the experience of fibromyalgia, investigating the mechanisms through which this chronic pain condition becomes an identity marker for people who experience the disease. Adopting documentary analysis as a methodological starting point, the research maps and compares state legislative initiatives that seek to equate fibromyalgia with disability, critically examining the legal categories mobilized in these legal instruments and their implications for the daily lives of individuals. Beyond the description of this political-legal movement, the work problematizes the conceptual tensions and social effects arising from this classification, articulating bibliographic discussion with an ethnographic approach sensitive to narratives and bodily experiences. The investigation culminates in an analysis of the implications of legal recognition on the subjectivity and life trajectories of people with fibromyalgia, especially exploring the dimensions of suffering, identity, and biological citizenship that emerge in this process. Furthermore, the work stems from an anthropological analysis, focusing on ethnography as a perspective in order to understand the dynamics of participants in an association and how the experience of fibromyalgia can be compared to a disability.