ANATOMY OF PAIN: THE QUEST FOR THE RECOGNITION OF FIBROMYALGIA AS A DISABILITY
Fibromyalgia; Recognition; Disability; Ethnography; Embodiment.
This anthropological investigation analyzes the social, political, and legal processes surrounding the recognition of fibromyalgia as a disability in Brazil. The study examines how social actors, political institutions, and legal texts apprehend the experience of fibromyalgia, investigating the mechanisms through which this chronic pain condition is transformed into an identity marker for individuals living with the illness. Adopting documentary analysis as a methodological starting point, the research maps and compares state-level legislative initiatives that seek to equate fibromyalgia with disability status, critically examining the legal categories mobilized in these legal provisions and their implications for the subjects' daily lives. Beyond describing this politico-legal movement, the study problematizes the conceptual tensions and social effects arising from this classification, articulating a bibliographical review with an ethnographic approach sensitive to narratives and embodied experiences. The investigation culminates in a final chapter dedicated to analyzing the implications of legal recognition for the subjectivity and life trajectories of people with fibromyalgia, especially exploring the dimensions of suffering, identity, and biological citizenship that emerge in this process.