Blockchain Applied to the Technological Ecosystem of the revELA Platform: Applied in the Context of Amyotrophic Lateral Sclerosis (ALS)
Electronic Health Record, Amyotrophic Lateral Sclerosis, National ALS Registry, Blockchain, Hyperledger Fabric
Amyotrophic Lateral Sclerosis (ALS) is a neurodegenerative disease that, despite being rare, has seen an increase in prevalence in recent years. Due to its heterogeneity, monitoring the progression of the disease is complex and ideally requires a multidisciplinary approach, which is essential to provide adequate care and improve the quality of life of patients. In parallel with care provided by the multidisciplinary team, technological tools such as electronic records and patient medical records have emerged, which assist in studies and monitoring the progression of this disease for each individual. In Brazil, we have the National ALS Registry, which consists of a digital health solution that aims to collect epidemiological data from various ALS patients in Brazil. Given the use of technological solutions such as this, concerns arise regarding security, data integrity and the importance of an interoperable platform for sharing with other systems. To address these concerns, blockchain technology has been attracting a lot of attention in several areas that already see the possibilities for progress with its incorporation. Considering the needs for security, auditability, interoperability and to make the National Registry increasingly robust, this work presents the configuration of a blockchain network with the Hyperledger Fabric framework and the implementation of an API used to integrate the blockchain with the ELA National Registry. To evaluate the performance of the proposed solution, the Hyperledger Caliper tool was used, which is a reference for benchmarking blockchain solutions.