Banca de DEFESA: EMILIA MARCIA GOMES DE SOUZA E SILVA

Uma banca de DEFESA de DOUTORADO foi cadastrada pelo programa.
STUDENT : EMILIA MARCIA GOMES DE SOUZA E SILVA
DATE: 24/03/2023
TIME: 08:30
LOCAL: UFRN
TITLE:

Evaluation of the effects of telerehabilitation in caregivers of patients with neurological diseases.


KEY WORDS:

Caregiver; Quality of life; Nervous System Diseases; Self care; Exercise


PAGES: 150
BIG AREA: Ciências da Saúde
AREA: Fisioterapia e Terapia Ocupacional
SUMMARY:
Introduction: The caregiver is a key player in supporting people with chronic illnesses during
their routine and planned medical activities. Informal care for people with neurological
diseases, notably neurodegenerative ones, such as Amyotrophic Lateral Sclerosis (ALS) goes
through intense stress, overload, reduced self-care, and consequently worsening quality of
life. Physical activity provides additional effects on caregivers, however, they do not seem
to prioritize their own health, but the person cared for. After the COVID-19 pandemic and
the necessary social distance, telerehabilitation became stronger as an option for maintaining
treatments and helping with care. Currently, telerehabilitation is a great alternative for people
with difficulties in time management, and in face-to-face meetings. Although, there is no
consensus on the best intervention for caregivers, whether synchronous or asynchronous. Objectives:
Objective of study 1: To assess the impact of telerehabilitation on the burden,
stress, pain, and quality of life of caregivers of people with neurological disorders. Objective
of study 2: To analyze and compare the results of applying for an educational self-care program
via telerehabilitation, synchronous and asynchronous, on the physical and mental health
of caregivers of people with ALS. Methods: Methods of study 1: This is a systematic
review, carried out in the following databases: MEDLINE Ovid, Embase; Cochrane Central
Register of Controlled Trials (CENTRAL); Pedro; and PsycINFO Ovid. Clinical trials that
performed telerehabilitation included, assessing the burden, stress, pain, and/or quality of life
of caregivers of people with neurological diseases, without the restriction of language or year.
Four independent reviewers selected eligible studies. The quality of evidence and the risk of
bias were assessed according to the tools recommended by the Cochrane team. Methods
of study 2: Study 2 consists of a blinded, randomized, controlled clinical trial. 17 participants
were recruited, and randomized to the experimental group (EG=9) and control group
(CG=8). The EG received an informative booklet and participated in a telerehabilitation program
for 6 weeks, where topics related to physical and mental well-being were discussed. The
meetings took place via the online audio and video platform and had a neuropsychologist,
nutritionist, and physiotherapist, synchronously. The CG received an informative booklet
and guidance on the importance of self-care and physical activity. During the six weeks, the
CG had 2 follow-up moments, via telephone contact, to resolve doubts about the information
contained in the booklet. As care measures: stress burden (Zarit Scale), quality of life (World
Health Organization Quality of Life-100), pain (McGill Pain Scale), stress (Perceived Stress
Scale), and depression (Beck Depression Inventory) were assessed before, after the interventions,
and at the 30-day follow-up. Results: Result of study 1: 80,043 articles were found
through the search strategy, 75,111 were selected for reading the title and abstract, of these
75,108 articles were excluded, thus, only 07 articles were selected for reading in full and,
finally, it included 02 studies in this systematic review. One of them dealt with caregivers
of people with stroke and the other with caregivers (wives) of individuals with Alzheimer’s.
Result of study 2: Differences were observed in the physical domain of quality of life in the
experimental group and in the environment in the control group. Improvements in the number
of pain descriptors in the experimental group and in the pain index in both groups were
found. There was no statistically significant difference between the groups. Conclusion:
There is an advancement in the quality of life of caregivers after applying for a self-care
program through telerehabilitation, demonstrating that both synchronous and asynchronous
forms can be used. There is an evident lack and scarcity of research on telerehabilitation in
caregivers of people with neurological diseases, which is even worse when the disease is rare,
showing the invisibility of this population.

COMMITTEE MEMBERS:
Externa à Instituição - CAROLINE CUNHA DO ESPIRITO SANTO - ISD
Presidente - 2179208 - ANA RAQUEL RODRIGUES LINDQUIST
Externa à Instituição - LORENNA MARQUES DE MELO SANTIAGO - ISD
Externa à Instituição - LORENNA RAQUEL DANTAS DE MACEDO BORGES - UFRN
Interna - 2319151 - TATIANA SOUZA RIBEIRO
Notícia cadastrada em: 08/03/2023 13:11
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