Barriers and facilitators for participation on perceived of disabled children/adolescents and their parents: a qualitative study with focus groups
Social Participation, People with Disabilities, International Classification of Functioning, Disability and Health, Focus Groups, Rehabilitation Research
Introduction Participation is the involvement of the individual in situations of daily life. For children and teens, this involves recreational, school, and community activities that provide experiences and enhance functionality. Deficiency, the existence of any change in function or body structure, is one of the factors that may restrict participation. However, environmental factors (environment, technology, attitudes or services) may also influence this participation, either as a barrier or as a facilitator. Knowing these aspects makes it possible to formulate strategies that facilitate participation, especially when the individual's own perception is sewn. Objective Identify barriers and facilitators for the participation of children/adolescents with disabilities, in the perspective of parents and children. Method A qualitative study using focal groups. The sample will be composed of individuals with physical disabilities from 6 to 16 years old and their respective parents/caregivers. Two focus groups will be formed at each meeting, one with the parents/caregivers and the other with the patients. Each group will have a moderator who will be responsible for directing the discussions, following a roadmap of predetermined guiding questions. The speeches will be recorded and later transcribed for a thematic-categorial analysis. The transcripts will be analyzed by 3 independent judges who will correlate the statements with the domains of the International Classification of Functioning, Disability and Health. The categories appointed by the judges will be confronted and analyzed by the moderators to resolve the differences and decide which categories will be used for discussion. Expected Results We hope to identify and compare the barriers and facilitators pointed out by parents / caregivers and children, making it possible to draw up strategies to improve the participation of the subjects analyzed.