SOCIOEDUCATIONAL CONTEXT AND THE EVALUATION OF FUNCTIONAL DEVELOPMENT AND ADAPTIVE BEHAVIOR OF CHILDREN WITH CONGENITAL ZIKA SYNDROME (CZS): Contributions to the Intersectorality between Education and Health
Congenital Zika Syndrome; Microcephaly; Adaptative Skills.
In 2015, the relationship between the Zika virus epidemic and the increase in cases of microcephaly in Brazil, particularly in the Northeast region, was confirmed. This condition, known as Congenital Zika Syndrome (CZS), severely affects children's neurological development, resulting in microcephaly and other complications. Furthermore, families in situations of socioeconomic vulnerability face social and economic challenges, while children experience neurodevelopmental delays. The present study aimed to understand the impact of CZS on child development and its consequences in school and family contexts. To this end, the general objective was to assess the adaptive skills of children with CZS in municipal schools in the Metropolitan Region of Recife, a city considered the epicenter of the epidemic. The specific objectives sought to describe the sociodemographic characteristics of the affected families and children; identify the educational context through the reports of education professionals in municipal schools; and evaluate the children's adaptive skills. The thesis was organized into three interdependent studies: The first study consists of a systematic review of the neurodevelopmental assessment process of children with CZS, following PRISMA guidelines to ensure transparency and methodological rigor, using international databases and descriptors in English. The second study, of an empirical nature, assessed the adaptive skills of 25 children with CZS enrolled in schools in the Metropolitan Region of Recife, using the Vineland-3 Scale. Interviews with parents and teachers were also conducted to analyze the socioeconomic impact and the challenges faced in the school environment. Based on the data, intersectoral guidelines were developed. Data analysis was conducted using cluster analysis and the Chi-square test, allowing for the identification of different adaptive skills among the children. The research was approved by the ethics committee, and its results have the potential to contribute to the development of public policies and educational and health interventions aimed at children affected by CZS.