SOCIOEDUCATIONAL CONTEXT AND THE EVALUATION OF FUNCTIONAL DEVELOPMENT AND ADAPTIVE BEHAVIOR OF CHILDREN WITH CONGENITAL ZIKA SYNDROME (CZS): Contributions to the Intersectorality between Education and Health
Congenital Zika Syndrome; Microcephaly; Assessment
In 2016, the link between the Zika virus epidemic and the increase in microcephaly cases in Brazil was confirmed, especially in the Northeast region. This condition, called Congenital Zika Syndrome (CZS), severely affects children's neurological development, resulting in microcephaly and other complications. Additionally, families in socioeconomically vulnerable situations face social and economic challenges, while children experience delays in cognitive and language development, creating new challenges for the educational system. The objective of this study is to examine the impact of CZS on child development and within school and family contexts. The methodology of the thesis is divided into three stages: a theoretical study, an empirical study, and an intervention proposal. The first study is a systematic review of the neurodevelopmental assessment process of children with CZS, following PRISMA guidelines to ensure transparency and methodological rigor, using international databases and English-language descriptors. The second study, of an empirical nature, evaluated the functional performance and adaptive behavior of 25 children with CZS enrolled in schools in the Metropolitan Region of Recife, using the Vineland-3 Scale. Interviews with parents and teachers were also conducted to analyze the socioeconomic impact and the challenges faced in the school environment. Data analysis was carried out through clusters, allowing for the identification of different functional profiles among the children. The research was approved by the ethics committee, and its results have the potential to contribute to the development of public policies and educational and health interventions aimed at children affected by CZS.