A look at our little warriors: an overview of conventional care for premature babies in socio-economic vulnerability
physical therapy, prematurity, development
The first years of life play a crucial role in the development of individuals,
especially those who spend their childhood in situations where they are at risk
of neurodevelopmental disorders. Prematurity is a health condition that
predisposes to the risk of neurodevelopmental disorders, since it adds the
biological risk factors of the baby to the possible social risk factors of their
families. Socio-economic characteristics have an impact on access to and
supply of health services for the care and stimulation of development that this
population needs. Although obstetric and neonatal care is a priority on the
national health policy agenda, early intervention services for those born
prematurely do not seem to take advantage of the neurological window of
opportunity at the beginning of life in order to prevent and minimize
neurodevelopmental alterations. High-income countries are developing
effective physiotherapeutic interventions to stimulate the development of
premature infants, from intensive care to the home environment. However,
interventions aimed at the hospital-home transition have not yet been tested
in middle- and low-income countries such as Brazil. The aim of this study was
to monitor the conventional care of premature babies living in areas with
difficult access to health services and in conditions of social vulnerability, in
order to identify barriers and opportunities for implementing a hospital-home
transition intervention service. To achieve this objective, five studies were
proposed: (1) Ratio between early stimulation procedures and preterm births
carried out by SUS in Brazil; (2) Satisfaction of mothers with participation in
hospital care for preterm infants in the 1st, 2nd and 3rd stages of the
Kangaroo Method; (3) Family perspectives on prematurity, neurodevelopment
and early intervention; (4) Neuromotor and cognitive outcomes of preterm
infants in middle- and low-income regions - a descriptive pilot study; and
finally (5) Proposal of a hospital-home intervention protocol: adaptation of an
American protocol (SPEEDI) for the Brazilian context. Data analysis shows
that access to early stimulation services by premature infants in the first year
of life is less than one appointment per year, and that although mothers are
satisfied with their participation during the first stages of the Kangaroo
Method, more than 90% of the dyads monitored do not return for
physiotherapy care in the first month after hospital discharge. In addition,
family members of premature infants have a limited perception of prematurity
and the need for intervention in the development of these babies, so that
cognitive and motor outcomes are below average at 3 months of age
corrected for prematurity. All the studies were approved by the UFRN
Research Ethics Committee and the subjects who agreed to take part signed
the informed consent form.